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Our little daughter -MIchaela- died August 12, 1998, it was unexpected and it was devastating to our little family. She died of Strep B Complications due to PROM-Premature Rupture of Membranes. At that time, we were first introduced to the horrible truth that there just wasn't anything around when we needed it. Everything was happening so quickly! Funeral, Plot, Casket, Autopsy, and on and on and on. The little things that mean so much to a mommy go by the wayside. Beautiful soft clothes that fit, a snuggly & warm blanket, just can't seem to found that fast. People try to be loving, but don't understand and don't think of those little things that make those last moments as special as possible under the circumstances. I would have given ANYTHING at that time to be able even to see my baby in the NICU. I wanted her alive, or at least a little more time! Her death launched our business at least in our hearts! We want to be there for you or your loved one that is going through the devastation of a baby's death, or the little life struggling in the hospital isolette. Our hearts are with you in grief and in rejoicing. We love to hear about a little preemie who makes it! We pray that you never experience the sorrow of not being able to bring your precious baby home.

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My twin sons were born at 24 weeks due to twin to twin transfusion syndrome. They were 1 lb 3 oz & 1 lb 6 oz. Nicholas suffered a grade 3 IVH. He spent 4 1/2 months in the NICU. Marcus spent 3 months 1 week. The boys are now 18 months. Marcus is walking and doesn't seem to have any visible affects from the prematurity. Nicholas is delayed but making improvements.

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I am so glad that I happened upon this website. I really thought that I was alone in thinking that there are many issues to be dealt with long after leaving the NICU. I was looking for information on feeding issues for one of my almost 1 year old twin boys. On the eve of their birthday I am feeling a strange mix of emotions over their premature birth. For my smaller twin there are many frustrations in getting him to take in all the fluid that he needs. He long ago got rid of his feeding tube but still getting him to drink enough fluid from a bottle is difficult. I'm so glad to know that I'm not the only one struggling to understand why I feel very frustrated at times, alone and also guilty for feeling this way.

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My special gift from God came at 29 weeks. I did everything I could to get to 30 weeks. Now she is 14 months today. After spending 3 months to the day she was born I have had no problems with her. She has not been sick at all. When she came home she came home with no machines or any medicines.

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I just read the article on birthdays and the complex emotions they invoke in parents of preemies. My daughter, Evelyn, was born at 29 weeks gestation, weighing in at 2lbs 110z. She had major surgery on her 3rd day of life to repair a duodenal atresia, she was intubated, she had jaundice, a staph infection,a heart murmur, apnea, an eating disorder, placiogephany, etc. and was hospitalized for 73 days. And as we approach her 2nd birthday, I feel such a strong need to reflect on her early days and to cry about those memories and the thoughts of what could have been. I was very glad to know I'm not alone in feeling this way.

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Hi - I had twins at just 26 weeks. Miss Kira was born at 1 pound 8.5 ounces, and my little guy was under a pound at just 15 ounces. He is the smallest baby to be born and survive at the hospital, and is doing wonderfully. It is amazing to see what faith and technology can provide to our family - please come visit for a more detailed story at http://clancast1.tripod.com and sign my guestbook while you're there.