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My son Andrew was born May 17, 2005 at 25 weeks, weighing 1lb 13oz. He is now Six weeks old and still on a ventilator to breath and has had surgery for his PDA.My husband, daughter and I are still trying to understand and deal with our new life and would love to talk to others in the same situation.

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Disabled parents are parents too! Please take the time to read my stories and check my site out My name is Laurie Edberg.My contact information is ledberg@telus.net http://tinyurl.com/66vo2 I am a 38 year old mother with a disability. My first child was born May 14,1990. My twins were born Sept 25,1996. From June 1990 till this date my children have been repeatedly apprehended.We live in Courtenay,BC,Canada.The only crime I have ever commited is of having ataxia and a tracheotomy.There has never been any evidence of any type of abuse. I have been repeatedly labeled with neglect.For the simple fact that I can not run after the twins or project my voice loud enough. I have in the past succeeded in my court cases,until Febuary of 2002.My oldest son was placed in continuing care in Febuary 2002,because a couple years earlier I was basically forced to sign a voluntary care agreement.I was told by the social worker at the time,that I either place him in voluntary care or she would apprehend all three boys.In Febuary of 2002,my twins were returned to my custody.Only to have them reapprehended a few months later.My twins were placed in continuing care in November of 2004. In November of 2002,I was given a court order allowing me 4 hours once a week unsupervised with my oldest son.Since my twins were apprehended in June of 2002,I had varied visits lasting from once a week to 4 days a week for a few hours at a time.Since the court case in November of 2004.My visits and access has been limited to once a month for 2 hours.Even though I was invited by the judge to apply for reasonable access.I ALSO NEED TO MENTION,IN THIS COURT CASE THAT EVEN THE MCFD'S WITNESSES EVEN TESTIFIED THE MOTHER AND CHILDREN LOVE EACHOTHER AND THERE IS/WAS NO EVIDIDENCE OF ABUSE. I have a appeal in the supreme court set for August 2005 for my appeal to be heard and a access order to be heard in family court. On April 14,2005 in the social workers office.She had stated in front of myself and my 2 local advocates,that there was every intention of putting boys up for adoption and the appeal before the courts had no weight on their intentions.But then after a hour of discussion,she agreed to increase my access to 2 visits a month for 3 hours. Eventhough s.15 and s.55 in the BC legislation and Children,Family Services Act discribes how there is a obligation by MCFD and other government agencies to put proper supports as needed into the home to keep the paramount family optics in place.This has never been properly done. It seems that to MCFD it is somehow prudent to place children in care,where it costs thousands of dollars a month. Than to keep the children in the home of a loving parent, where it would cost a fraction of that money to put proper supports in the home. IF YOU ARE A ADVOCATE FOR DISABLED PARENTS, I COULD CERTAINLY USE YOUR ASSISTANCE. YOUR ASSISTANCE WILL BE A ADDED BENEFIT TO THE ASSISTANCE I ALREADY HAVE. Thank you. THIS DELAY IS NOT JUSTICE TO MY CHILDREN. Thank you for your time. LAURIE EDBERG

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Hello, My name is Tony and I am the father of a 23 week old premie. Jayden was born on 5-25-05 at 1ib 7oz. He went through the honeymoon phase fine until his second week. It was discovered that he had brain bleeds on his left and right side of his brain. He has a Type 2 on his left and a Type 4 on his right. After it was discovered that he had brain bleeds, he started getting seizures(almost one every five minutes). They put him on three types of medications to stop the seizures and the doctors have now informed us that they have noticed a cavity on his right side of his brain which means that he will have cerebral palsy. They also feel that with the seizures he might have mental retardation or some form of cognitive disorder. Has anyone had, know or is currently going trhrough a situation similar to this?

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He came too early at 26weeks saying "Mom, I'm a superstar and wanted to meet." I poked a hole in my fish bowl that nearly took us both. I know you were sad those first few weeks; you had a fever you needed to break. I felt your presence when you finally got to meet me and knew you were afraid and did not want to leave me. My roller coaster ride has been a little bumpy, but the nurses call me "little volcano" because I can erupt all over the place. I hope that puts a smile on your loving face. Your prayers to St.Jude and God have helped me flourish, and daddy’s prayers to Allah has given me nourish. And just a few more months I will be home in a hurry. For now I love when you hold and sing to me. Love your son, Farouk (fa-rook_)named after grand-dad, and King Farouk of Egypt who was also a preemie